Martine L'Eveillé

AAO Director

Social Media Queen

Team Leader


Victoria Richardson

Social Media Coordinator

MEDICAL ADVISORS

We are a grassroots movement to raise awareness about Achalasia, a rare, incurable and progressive esophageal motility disease with only palliative treatment.

AAO is a 501(c) 3 organization.

To motivate patients, friends, family and the medical community to join in advocacy and raising awareness via press, education, events and fundraisers in hopes of finding the causation and cure of Achalasia.

Achalasia Awareness Month is September.

Although there will be special events for this month, in the meantime, plan your own, no matter how large or small. Our goal is getting the word out, one person at a time.


  CURE



Organization


Katie Lunder

Social Media Coordinator

Past Events

Betsy Stovsky and Maricar Gomez

Medical Information Coordinators

                                       Get Involved

MISSION


Projects

Achalasia Awareness can only be obtained with your help. Organize your own local 5k, invite your friends to celebrate Achalasia Awareness Month, share on social media and join us on Facebook, Twitter and Pinterest. Be creative and don't forget to make it fun!

Dr. Siva Raja

     Department of Thoracic and Cardiovascular Surgery, Cleveland Clinic.
Dr. Scott Gabbard 

     Department of Gastroenterology and Hepatology, Cleveland Clinic


Dr. Pankaj Jay Pasricha  

     Johns Hopkins University School of Medicine
    
Director, Johns Hopkins Center for Neurogastroenterology
                                       

Dr Steven Demeester 

     Thoracic Surgery, Portland, Oregon

     Formerly with USC Keck School of Medicine


Dr. John Pandolfino 

     Department of Gastroenterology, Northwestern Division Chief, Chicago


Dr. Homero Rivas 

     Director of Innovative Surgery, Stanford Assistant Professor of Surgery


Dr. Joel Richter

     USF Division of Digestive Diseases and Nutrition, Tampa, Florida


Dr. Haru Inoue

     Director of Digestive Disease Center, Showa University, Koto Toyosu Hospital

     Developer of POEM procedure in humans.



  



          

  

                                   

Nancy Lazarus

Founder of Achalasia Awareness Organization, Co-Founder Achalasia Awareness Month™ and Resident Dreamer

ABOUT

ACTION

    Achalasia Awareness






Welcome:

Last year was an amazing one for AAO. Many of our members were interviewed by their local media, had awareness events in their own communities and rose to the challenge of raising awareness. We here at AAO are working with Thoracic Surgeons, GI Specialists, as well as the media in our campaign to "Get The Word Out". Please come join us on Facebook, Twitter and Pinterest. You can find the links below and search AAORG on Pinterest.


Organize  your own local Awareness event and we may feature your story in our 'Members In Action' section (on the next page).


Advocate by having your voice heard on the State level and in Washington. Watch our Facebook page for Calls To Action.


Global Genes published an article about our Achalasia Awareness Month™. You can view it here.



New events will continue to be noted as we are made aware. Please check back often and visit our "Members in Action"  on the following  page.


  • September - Achalasia Awareness Month™

  • September 4th - London Meetup Group "Question Time On Achalasia" https://www.meetup.com/achalasia-104/events/242006827/

  • September 16th - Join AAO for our live, worldwide TweetOut for awareness to #StompOutAchalasia @achalasiaaware on Twitter. Let's wake up the world










  • November 5th New York Marathon.Stanford University Medical Adviser, Homero Rivas would like to put a team together with AAO in efforts to raise awareness for Achalasia. If you'd like to join the team, please contact us for more information.

                                                   



  • AAO joined Emory Gentics Lab in their webinar entitled: "Leading the Charge: The Role of Patients as Chief Advocates"

  • The London Meetup Group sponsored the event: Achalasia Causes and Some Non Gastrointestinal Consequences 

  • February 14th Rare Disease Day 2017 Reception at the Senedd, Cardiff UK http://bit.ly/2hPKCmO

  • February 28th Rare Disease Day 2017 - Westminster Reception, House of Commons, London UK http://bit.ly/2jGKThs

  • April 6th- Annual Cleveland Clinic Webchat 


LETS GET THE WORD OUT



DREAM

Who wE ARE

Find your inner power by helping others

Reach Out To

Educate, Motivate, Cure

What can you do? Work with your community and help make a difference.

Calendar

Meg Rosecrans

Co-Founder AAM

TEAM

Kasie Pate-Stearns

AAO Officer

Head of Campaigns

and Fundraising