Organization

TEAM

Kasie Pate-Stearns

AAO Officer

Head of Campaigns

and Fundraising

Martine L'Eveillé

AAO Director

Social Media Queen

Team Leader

Victoria Richardson

Social Media Coordinator

New events will continue to be noted as we are made aware. Please check back often and visit our  "Members in Action"  on the following  page.

• February 14th Rare Disease Day 2017 Reception at the Senedd, Cardiff UK http://bit.ly/2hPKCmO
  

• February 28th Rare Disease Day 2017 - Westminster Reception, House of Commons, London UK http://bit.ly/2jGKThs
  

• April 6th- Annual Cleveland Clinic Webchat 
  

• September - Achalasia Awareness Month™
  

• November 5th New York Marathon.Stanford University Medical Adviser, Homero Rivas would like to put a team together with AAO to run this years marathon in efforts to raise awareness for Achalasia. If you'd like to join the team, please contact us for more information.
  

                                                    Past Events

• AAO joined Emory Gentics Lab in their webinar entitled: "Leading the Charge: The Role of Patients as Chief Advocates"
  
  

• The London Meetup Group sponsored the event: Achalasia Causes and Some Non Gastrointestinal Consequences 
  

Nancy Lazarus

Who wE ARE

Find your inner power by helping others

Welcome:

Last year was an amazing one for AAO. Many of our members were interviewed by their local media, had awareness events in their own communities and rose to the challenge of raising awareness. We here at AAO are working with Thoracic Surgeons, GI Specialists, as well as the media in our campaign to "Get The Word Out". Please come join us on Facebook, Twitter and Pinterest. You can find the links below and search AAORG on Pinterest.

Organize  your own local Awareness event and we may feature your story in our 'Members In Action' section (on the next page).

Advocate by having your voice heard on the State level and in Washington. Watch our Facebook page for Calls To Action.

Global Genes published an article about our Achalasia Awareness Month™. You can view it here.

We are a grassroots movement to raise awareness about Achalasia, a rare, incurable and progressive esophageal motility disease with only palliative treatment.

AAO is a 501(c) 3 organization.

To motivate patients, friends, family and the medical community to join in advocacy and raising awareness via press, education, events and fundraisers in hopes of finding the causation and cure of Achalasia.

Achalasia Awareness Month is September.

Although there will be special events for this month, in the meantime, plan your own, no matter how large or small. Our goal is getting the word out, one person at a time.

MISSION

Projects

ABOUT

Reach Out To

Educate, Motivate, Cure

What can you do? Work with your community and help make a difference.

Achalasia Awareness can only be obtained with your help. Organize your own local 5k, invite your friends to celebrate Achalasia Awareness Month, share on social media and join us on Facebook, Twitter and Pinterest. Be creative and don't forget to make it fun!

ACTION

  CURE

    Achalasia Awareness

MEDICAL ADVISORS

Betsy Stovsky and Maricar Gomez

Medical Information Coordinators

Meg Rosecrans

Co-Founder AAM

                                       Get Involved

DREAM

Calendar

LETS GET THE WORD OUT

Dr. Siva Raja Department of Thoracic and Cardiovascular Surgery, Cleveland Clinic.
Dr. Scott Gabbard  Department of Gastroenterology and Hepatology, Cleveland Clinic

Dr Steven Demeester  Thoracic Surgery, Portland, Oregon

                                     Formerly with USC Keck School of Medicine

Dr. John Pandolfino  Department of Gastroenterology, Northwestern Division Chief, Chicago

Dr. Homero Rivas  Director of Innovative Surgery, Stanford Assistant Professor of Surgery

Dr. Joel Richter USF Division of Digestive Diseases and Nutrition, Tampa, Florida

Dr. Haru Inoue Director of Digestive Disease Center, Showa University, Koto Toyosu Hospital

                        Developer of POEM procedure in humans.