Social Media Queen
Social Media Coordinator
We are a grassroots movement to raise awareness about Achalasia, a rare, incurable and progressive esophageal motility disease with only palliative treatment.
AAO is a 501(c) 3 organization.
To motivate patients, friends, family and the medical community to join in advocacy and raising awareness via press, education, events and fundraisers in hopes of finding the causation and cure of Achalasia.
Achalasia Awareness Month is September.
Although there will be special events for this month, in the meantime, plan your own, no matter how large or small. Our goal is getting the word out, one person at a time.
Social Media Coordinator
Betsy Stovsky and Maricar Gomez
Medical Information Coordinators
Achalasia Awareness can only be obtained with your help. Organize your own local 5k, invite your friends to celebrate Achalasia Awareness Month, share on social media and join us on Facebook, Twitter and Pinterest. Be creative and don't forget to make it fun!
Dr. Siva Raja
Department of Thoracic and Cardiovascular Surgery, Cleveland Clinic.
Dr. Scott Gabbard
Department of Gastroenterology and Hepatology, Cleveland Clinic
Dr. Pankaj Jay Pasricha
Johns Hopkins University School of Medicine
Director, Johns Hopkins Center for Neurogastroenterology
Dr Steven Demeester
Thoracic Surgery, Portland, Oregon
Formerly with USC Keck School of Medicine
Dr. John Pandolfino
Department of Gastroenterology, Northwestern Division Chief, Chicago
Dr. Homero Rivas
Director of Innovative Surgery, Stanford Assistant Professor of Surgery
Dr. Joel Richter
USF Division of Digestive Diseases and Nutrition, Tampa, Florida
Dr. Haru Inoue
Director of Digestive Disease Center, Showa University, Koto Toyosu Hospital
Developer of POEM procedure in humans.
Founder of Achalasia Awareness Organization, Co-Founder Achalasia Awareness Month™ and Resident Dreamer
Last year was an amazing one for AAO. Many of our members were interviewed by their local media, had awareness events in their own communities and rose to the challenge of raising awareness. We here at AAO are working with Thoracic Surgeons, GI Specialists, as well as the media in our campaign to "Get The Word Out". Please come join us on Facebook, Twitter and Pinterest. You can find the links below and search AAORG on Pinterest.
Organize your own local Awareness event and we may feature your story in our 'Members In Action' section (on the next page).
Advocate by having your voice heard on the State level and in Washington. Watch our Facebook page for Calls To Action.
Global Genes published an article about our Achalasia Awareness Month™. You can view it here.
New events will continue to be noted as we are made aware. Please check back often and visit our "Members in Action" on the following page.
September - Achalasia Awareness Month™
September 4th - London Meetup Group "Question Time On Achalasia" https://www.meetup.com/achalasia-104/events/242006827/
November 5th New York Marathon.Stanford University Medical Adviser, Homero Rivas would like to put a team together with AAO in efforts to raise awareness for Achalasia. If you'd like to join the team, please contact us for more information.
AAO joined Emory Gentics Lab in their webinar entitled: "Leading the Charge: The Role of Patients as Chief Advocates"
The London Meetup Group sponsored the event: Achalasia Causes and Some Non Gastrointestinal Consequences
February 14th Rare Disease Day 2017 Reception at the Senedd, Cardiff UK http://bit.ly/2hPKCmO
February 28th Rare Disease Day 2017 - Westminster Reception, House of Commons, London UK http://bit.ly/2jGKThs
April 6th- Annual Cleveland Clinic Webchat
LETS GET THE WORD OUT
Reach Out To
Educate, Motivate, Cure
What can you do? Work with your community and help make a difference.
Head of Campaigns