Achalasia Awareness






Organization


Katie Lunder

Social Media Coordinator

Past Events

TEAM

Kasie Pate-Stearns

AAO Secretary

Head of Campaigns

and Fundraising

Martine L'Eveillé

AAO Director

Social Media Queen

Team Leader


Annie-rose Williams

Fundraiser Extraordinaire

MEDICAL ADVISORS

Calendar

Betsy Stovsky and Maricar Gomez

Medical Information Coordinators

Meg Rosecrans

Co-Founder AAM



New events will continue to be noted as we are made aware. Please check back often and visit our "Members in Action"  on the following  page.


  • September - Achalasia Awareness Month™

  • September 4th - London Meetup Group "Question Time On Achalasia" https://www.meetup.com/achalasia-104/events/242006827/

  • September 16th - Join AAO for our live, worldwide TweetOut for awareness to #StompOutAchalasia @achalasiaaware on Twitter. Let's wake up the world










  • November 5th New York Marathon.Stanford University Medical Adviser, Homero Rivas would like to put a team together with AAO in efforts to raise awareness for Achalasia. If you'd like to join the team, please contact us for more information.

                                                   



  • AAO joined Emory Gentics Lab in their webinar entitled: "Leading the Charge: The Role of Patients as Chief Advocates"

  • The London Meetup Group sponsored the event: Achalasia Causes and Some Non Gastrointestinal Consequences 

  • February 14th Rare Disease Day 2017 Reception at the Senedd, Cardiff UK http://bit.ly/2hPKCmO

  • February 28th Rare Disease Day 2017 - Westminster Reception, House of Commons, London UK http://bit.ly/2jGKThs

  • April 6th- Annual Cleveland Clinic Webchat 


LETS GET THE WORD OUT

                                       Get Involved



DREAM

Dr. Siva Raja

     Department of Thoracic and Cardiovascular Surgery, Cleveland Clinic.
Dr. Scott Gabbard 

     Department of Gastroenterology and Hepatology, Cleveland Clinic


Dr. Pankaj Jay Pasricha  

     Johns Hopkins University School of Medicine
     Director, Johns Hopkins Center for Neurogastroenterology
                                       

Dr Steven Demeester 

     Thoracic Surgery, Portland, Oregon

     Formerly with USC Keck School of Medicine


Dr. John Pandolfino 

     Department of Gastroenterology, Northwestern Division Chief, Chicago


Dr. Homero Rivas 

     Director of Innovative Surgery, Stanford Assistant Professor of Surgery


Dr. Joel Richter

     USF Division of Digestive Diseases and Nutrition, Tampa, Florida


Dr. Haru Inoue

     Director of Digestive Disease Center, Showa University, Koto Toyosu Hospital

     Developer of POEM procedure in humans.



  



          

  

                                   

Nancy Lazarus

Founder of Achalasia Awareness Organization, Co-Founder Achalasia Awareness Month™ and Resident Dreamer

Who wE ARE

Find your inner power by helping others

Welcome:

Now in our fourth year, we are thrilled with the commitment of our members to raise awareness. Many have been interviewed by their local media, held awareness events in their own communities and rose to the challenge of educating others. AAO works with Thoracic Surgeons, GI Specialists, as well as the media in our campaign to "Get The Word Out". Join us on Facebook, Twitter and Pinterest. You can find the links below and search AAORG on Pinterest.


Organize  your own local Awareness event and we may feature your story in our 'Members In Action' section (on the next page).


Advocate by having your voice heard on the State level and in Washington. Watch our Facebook page for Calls To Action.


Global Genes published an article about our Achalasia Awareness Month™. You can view it here.

We are a grassroots movement to raise awareness about Achalasia, a rare, incurable and progressive esophageal motility disease with only palliative treatment.

AAO is a 501(c) 3 organization.

To motivate patients, friends, family and the medical community to join in advocacy and raising awareness via press, education, events and fundraisers in hopes of finding the causation and cure of Achalasia.

Achalasia Awareness Month is September.

Although there will be special events for this month, in the meantime, plan your own, no matter how large or small. Our goal is getting the word out, one person at a time.

MISSION


Projects

ABOUT

Reach Out To

Educate, Motivate, Cure

What can you do? Work with your community and help make a difference.

Achalasia Awareness can only be obtained with your help. Organize your own local 5k, invite your friends to celebrate Achalasia Awareness Month, share on social media and join us on Facebook, Twitter and Pinterest. Be creative and don't forget to make it fun!

ACTION


  CURE